The Gateway Bleeding Disorders Association
is a nonprofit, community-based organization, dedicated to the advocacy, education, and support of families affected by bleeding disorders.
An Introduction to Bleeding Disorders
Hemophilia
Hemophilia is primarily an inherited disorder that does not allow blood to clot properly. There is a deficiency in the body of the necessary proteins, also called clotting factors, needed to stop bleeding. Hemophilia A is the deficiency of clotting factor VIII and according to the US Centers for Disease Control and Prevention (CDC), hemophilia occurs in approximately 1 in 5,617 male births.
Hemophilia B is the deficiency of clotting factor IX and affects about 1 in 25,000 males.
Von Willebrands
VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3.
Upcoming Events
Understanding Hympavzi
Start Time: 6:00 p.m.
Learn more about HYMPAVI, Pfizer’s new therapy for the treatment of hemophilia. This program will cover some information on what HYMPAVZI is and how it works.
RSVP to carly@gatewayhemophilia.org by 9/3.
Sponsored by:
Community Voices: Learn from D. Guy Young and two Peers about a different subcutaneous treatment for hemophilia A or B
Start Time: 5:00 PM
Join Dr. Young for an engaging session along with two peers from the hemophilia community who will share their experience with a subcutaneous prophylactic treatment for people with Hemophilia A or B with/without inhibitors. You will learn how this treatment works, its benefits and safety, and how to get the right dose. RSVP to carly@gatewayhemophilia.org by 9/10.
Sponsored by:
Pathfinders
Start Time: 10:30 a.m.
End Time: 2:30 p.m.
Pathfinders is GutMonkey’s outdoor adventure program designed to help individuals and families affected by bleeding disorders connect with one another, build confidence, and experience the outdoors together in an accessible and supportive way. Whether you’re an experienced explorer or just getting started, there’s a place for you.
RSVP to carly@gatewayhemophilia.org by 9/18.
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