Privacy Policy

Privacy Notice

This privacy notice discloses the privacy practices for http://www.gatewayhemophilia.org/. This privacy notice applies solely to information collected by this web site. It will notify you of the following: 

  1. What personally identifiable information is collected from you through the web site, how it is used and with whom it may be shared. 
  2. What choices are available to you regarding the use of your data. 
  3. The security procedures in place to protect the misuse of your information. 
  4. How you can correct any inaccuracies in the information. 
  1. How policy changes will be communicated.

Information Collection, Use, and Sharing
We are the sole owners of the information collected on this site. We only have access to/collect information that you voluntarily give us via email or other direct contact from you. We will not sell or rent this information to anyone.  We collect your name and address for GHA mailings only. 

We will use your information to respond to you, regarding the reason you contacted us. We will not share your information with any third party outside of our organization, other than as necessary to fulfill your request, e.g. to ship an order. 

Unless you ask us not to, we may contact you via email in the future to tell you about educational programs, new products or services, or changes to this privacy policy. 

Your Access to and Control Over Information
You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the email address or phone number given on our website: 

  • See what data we have about you, if any. 
  • Change/correct any data we have about you. 
  • Have us delete any data we have about you. 
  • Express any concern you have about our use of your data. 

Security
We take precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline.

Wherever we collect sensitive information (such as credit card data), that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a closed lock icon at the bottom of your web browser, or looking for “https” at the beginning of the address of the web page. 

While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment. 

Changes to this Policy

We may make changes to this privacy notice from time to time.  You may check back on this page at any time to see our current policy.

If you feel that we are not abiding by this privacy policy, you should contact us immediately via telephone at 314-482-5973 or via email at info@gatewayhemophilia.org. 

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Upcoming Events
09/26/2026

Pathfinders

Start Time: 10:30 a.m.

End Time: 2:30 p.m.

Pathfinders is GutMonkey’s outdoor adventure program designed to help individuals and families affected by bleeding disorders connect with one another, build confidence, and experience the outdoors together in an accessible and supportive way. Whether you’re an experienced explorer or just getting started, there’s a place for you.

RSVP to carly@gatewayhemophilia.org by 9/18.

 

10/05/2026

Tee off 4 Hemophilia

Start Time: 12:00 p.m. Shotgun Start

The money raised at this tournament will be used to fund the programs and services provided throughout the year to people affected by bleeding disorders. GBD hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, medic alerts, and bleeding disorder camp.

Click here for pricing and registration. Registration closes September 28th.

10:30 a.m. Registration

11:00 a.m. Lunch

12:00 p.m. Shotgun Start

5:30 p.m. Dinner, Silent Auction & Awards

10/09/2026

FAB

GBD will co-host a FAB (Females And Bleeding Disorders) conference with Midwest Hemophilia Association, Nebraska Chapter of NBDF, and Bleeding Disorders of the Heartland, for women 18 and older with a bleeding disorder, carriers, spouses of a person with a bleeding disorder, and parents of a person with a bleeding disorder. Parents must live in the same household. Attendees must be a member and live in GBD’s service area. We are sold out, please contact info@GatewayHemophilia.org to be put on a waitlist.

Sponsored by:

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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