There are approximately 141 hemophilia treatment centers in the United States that offer comprehensive medical care to people with coagulation disorders. The concept of a Hemophilia Treatment Center is having one facility where comprehensive hemophilia care takes place. Care providers treat the whole person and are a great resource to both the patient and their family. They look at every aspect of care including physical, emotional, psychological, educational, financial, and vocational needs. Members of the care provider team include:
- Hematologists – physicians specializing in blood disorders
- Nurses – medical specialists in hemophilia care
- Social Workers -specialists who assist with the issues of daily living, such as adjusting to hemophilia and locating resources for insurance or financial needs
- Physical Therapists – specialists in activity, exercise, and rehabilitation
- Orthopedic Specialist – physician specializing in disorders of the bones and joints
If you need information about a Hemophilia Treatment Center in another area, please visit the Center for Disease Control’s web site: https://www.cdc.gov/hemophilia/treatment/treatment-centers.html?CDC_AAref_Val=https://www.cdc.gov/ncbddd/hemophilia/HTC.html
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The John Bouhasin Center for Children with Bleeding Disorders
Cardinal Glennon Children’s Medical Center
St. Louis University Department of Pediatrics
1465 South Grand Blvd., St. Louis, MO 63104
HTC 734, Great Plains Region
Phone: (314) 577-5638
After Hours: (314) 577-5600 Request the Hemophilia doctor on call to be paged
Contacts:
John Puetz, MD and Chris Hugge, MD – Pediatric Hematologists
Lydia Johnson, RN, BSN – Nurse Coordinator
Mary Kay Brasken, MSW, LCSW – Social Worker
Pamela Miller, PT – Physical Therapist
Makeda Bingham– Data Manager/Administrative Assistant
John Bouhasin Center for Children with Bleeding Disorders website
Saint Louis University Center for Bleeding and Thrombotic Disorders
Hemophilia Treatment Center, Adult Program
St. Louis University Hospital – West Pavilion
3655 Vista Avenue, 2nd Floor
St. Louis, MO 63110
HTC 735, Great Plains Region
Clinic Phone: (314) 617-3640
After Hours: (314) 257-8000 Ask the hospital operator to immediately page the Hematologist on-call.
Contacts:
John Richart, MD – Medical Director
Hailey Barron, NP Nurse Practitioner
Heather Ziegerer, RN – Nurse Coordinator
Laura Herman, PT – Physical Therapist
Sarah Bencini, MSW – Social Worker
Matt Heaton, Hemophilia Coordinator
St. Louis University HTC
St. Louis Children’s Hospital/Washington University Center for Bleeding & Clotting Disorders-Pediatric Program
One Children’s Place
St. Louis, MO 63110
HTC 738, Great Plains Region
Phone: (314)454-6018 Fax: 844-621-4392
After Hours: (314) 454-6000 Ask for hematologist/resident on call
Contacts:
Surbhi Saini, MBBS – Pediatric Hematologist (Medical Director)
David Wilson, MD, PhD – Pediatric Hematologist
Melanie Fields, MD – Pediatric Hematologist
Irem Eldem, MD – Pediatric Hematologist
Marie Turner, PNP – Nurse Practitioner
Angie Kaminski, RN, BSN – Pediatric Nurse
Makenzie Sledd, Physical Therapist
Darcie Klein, PhD, Pediatric Psychologist
Sophie Mauk, MSW – Social Worker
Susan Pardeshi RN, BSN – Program Coordinator
Washington University Center for Bleeding & Blood Clotting Disorders-Adult Program
660 South Euclid Avenue MCS 8125-22-1101
St. Louis, MO 63110
HTC 737, Great Plains Region
Phone: (314) 362-8814 Fax: (314) 696-1391
After Hours: (314) 362-1242 Ask for hematologist/resident on call
Appointment Line: (314) 362-7216 *Be sure to specify that a hemophilia appointment is needed so that you are scheduled in the comprehensive bleeding disorder clinic
New referrals: Phone (314) 273-1388 Fax (888)869-4437
Contacts:
Elaine Majerus, MD, PhD – HTC Medical Director
Morey Blinder, MD – Hematologist
Susan Pardeshi, RN, BSN – Bleeding Disorder Program Coordinator
Lauren Brewer, FNP-BC – Nurse Practitioner
Lynn Golec, APRN- Nurse Practitioner
Ruth Geronsin, BSN, RN- Nurse Coordinator
Jaclyn Jump, BSN, RN – Nurse Coordinator
Anne Merritt, BSN, RN – Nurse Coordinator
Katy Morgan, BSN, RN – Nurse Coordinator
Makenzie Sledd, MPT- Physical Therapist
Andrew Robinson, MSW, LCSW- Social Worker
Sabrina Barber- Clinical Research Coordinator
Barnes-Jewish West County
Medical Office Building #2
10 Barnes West Dr., Ste. 200
Creve Coeur, MO 63141
Center for Advanced Medicine
5201 Midamerica Plaza, Ste. 2300
St. Louis, MO 63129
Boone Hospital
1600 East Broadway
Columbia, MO 65201
Southern Illinois Healthcare Institute
1400 Pine Oak Drive
Carterville, IL 62918
Missouri Hemophilia Treatment Center
Children’s Cancer and Blood Disorder Center
1 Hospital Drive
Columbia, MO 65201
HTC 736, Great Plains Region
Phone: (573) 882-3961 Fax: (573) 884-4277
Pediatrics After Hours: (573) 882-4141. Ask for the pediatric hematologist on call
Contacts:
Barbara Gruner, MD – HTC Medical Director
Erin Gillespie, RN – Nurse Coordinator
Deana Bartholomew – Data Coordinator
Shannen Woodrey – Research Coordinator
Bleeding & Clotting Disorders Institute
427 W. Northmoor Road
Peoria, IL 61614
HTC 557, Region V (West)
Phone: (309) 692-5337 or (877) 335-2234 Fax: (309) 693-3913
Email: info@ilbcdi.org
After Hours: (309) 677-6085
Michael D. Tarantino, MD – CEO/CMO
Becky Burns – COO
