Women with Bleeding Disorders

Although hemophilia is thought of as a man’s bleeding disorder, women can have it, too. The most common bleeding disorder is von Willebrand disease (VWD), which occurs in about 1% of the US population. Symptoms include nosebleeds, easy bruising, and heavy and prolonged menstrual periods that last longer than a week, also known as menorrhagia.

The National Bleeding Disorders Foundation’s Victory for Women website has all the information you need about symptoms, testing and diagnosis, and managing your bleeding disorder.

Women with Bleeding Disorders

If you have symptoms of a bleeding disorder, your life can be better if you know. Better if you seek care. Better if you get treatment. Find out if you are at risk, and take the first step in feeling better. Better You Know.

What is von Willebrand Disease?

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3.

GBD hosts a regional FAB (Females and Bleeding) Disorders conference each October. Visit GBD’s list of events for additional information.

Sign Up For Our Newsletter
Upcoming Events
09/10/2026

Understanding Hympavzi

Start Time: 6:00 p.m.

Learn more about HYMPAVI, Pfizer’s new therapy for the treatment of hemophilia. This program will cover some information on what HYMPAVZI is and how it works.

RSVP to carly@gatewayhemophilia.org by 9/3.

Best American Restaurant in Chesterfield, MO | EdgeWild

Sponsored by:

 

09/17/2026

Community Voices: Learn from D. Guy Young and two Peers about a different subcutaneous treatment for hemophilia A or B

Start Time: 5:00 PM

Join Dr. Young for an engaging session along with two peers from the hemophilia community who will share their experience with a subcutaneous prophylactic treatment for people with Hemophilia A or B with/without inhibitors. You will learn how this treatment works, its benefits and safety, and how to get the right dose. RSVP to carly@gatewayhemophilia.org by 9/10.

Sponsored by:

09/26/2026

Pathfinders

Start Time: 10:30 a.m.

End Time: 2:30 p.m.

Pathfinders is GutMonkey’s outdoor adventure program designed to help individuals and families affected by bleeding disorders connect with one another, build confidence, and experience the outdoors together in an accessible and supportive way. Whether you’re an experienced explorer or just getting started, there’s a place for you.

RSVP to carly@gatewayhemophilia.org by 9/18.

 

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

We Need Your Support To
Continue Making An Impact